Feb 12, 2021

The broken promise that undermines human genome research

Posted by in category: biotech/medical

Although some researchers are reluctant to share genome data, the field is generally viewed as generous compared with other disciplines. Still, the repositories meant to foster sharing often present barriers to those uploading and downloading data. Researchers tell tales of spending months or years tracking down data sets, only to find dead ends or unusable files. And journal editors and funding agencies struggle to monitor whether scientists are sticking to their agreements.

Data sharing was a core principle that led to the success of the Human Genome Project 20 years ago. Now scientists are struggling to keep information free.

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